This morning I’m going to the hospital to receive the results of my liver biopsy. Earlier this year, elevated ALT in my blood test results and an ultrasound had doctors predicting I could have Autoimmune Hepatitis!
Following my liver biopsy a month ago, I’ve had to wait patiently, like a small child in a sweet shop, for my results. It got me thinking that sometimes not knowing what your future holds can send your mind into overdrive.
How do you not go insane while you wait for your diagnosis? Please people, learn from my mistake.
Don’t die waiting
In my mind so far I have died while waiting for a liver transplant. I’ve definitely put a tight time limit on my own mortality and thought I might even die before I receive these results. Worst case scenario is I die while I write this section of the blog post which would be both tragic and comedy at the same time.
Occupy your mind with anything that takes your mind off of being ill. Sports activities are a good shout or simply being around people who can talk to you about more than the gore will do wonders. Surround yourself with happy and positive family and friends.
Positivity is the key. You need to be in the right frame of mind to recieve a diagnosis and decide on the best next steps for you and you won’t be able to do that with a black cloud hanging over your head.
Don’t self diagnose
Some light research is perfectly fine. It’s good to know what options you might be faced with and go to your appointments knowledgeable so you can ask educated questions. However, be careful of the amount of information you consume. Especially if you find it all daunting amd don’t understand it all. It can lead to you form your own judgement about an illness and what it means to you.
Following my own research, I appear to have developed every single symptom of the disease, that I hadn’t had before and now I can’t be sure if these are faux symptoms or real life pains. Go easy on the search engines and don’t Ask Jeeves absolutely everything.
Tell someone you trust
I just reveal my fears to those I trust and who understand my condition. For me my boyfriend, mum, dad, brothers and sister-in-law are aware of my fears and have been with me through the tears and range of emotion about possibly having another AI disease. It’s always nice to know that people, who really care, are waiting for your results with you.
Tell your employer
Now this is really going to be your call as to whether you tell your employer or not. For me its been great to know someone at work will understand if I might need a time-out from the chaos when things get too much. I had no choice, with all my various hosptial appointments, but to explain what I’m going through and the process. It also helps them to know why you may not be handling things if a possible illness is affecting you.
Good luck to all who are waiting for test results. I’ll be sure to update you on mine. Feel free to share what results you’re waiting for below.
Wish me luck!